I stayed in the hospital room with Wynn overnight, and yes, both of us are completely wiped out. Our little pumpkin just could not stay asleep - while I could tell she was getting better about the pain in her mouth and throat as the night went on, that only meant more blood and saliva was getting into her tummy and giving her discomfort there. And, as Ann mentioned, many soggy diapers. So I would say we were up every 45 minutes or so. (A hospital is a strange place at 4 AM...)
It wasn't until about 6:30 this morning that she really achieved a deep sleep state. I went down and got some breakfast - looking like heck, but they're used to it.
She was up by 7:30. We played a little bit of "Where's Wynn?", watched some Chinese animation I'd brought along (she actually paid attention for about 15 minutes), and had a bit of Jello they'd brought up for her and some yogurt from my breakfast. She was initially uncertain about eating (shake of the head "no") but once she had a bite of gelatin, she really got pleasure from eating again. Seeing her *want* to eat more brought a few tears to my eyes, of exhaustion and joy.
She fell asleep until about 9:00. The duty nurse and I got her up and disconnected her sensors and IV line, and took off her no-no sleeves, so that I could take her for a little stroll around the floor. We also tried to give her an oral dose of Tylenol -- getting her on semi-solid foods and being able to take oral pain meds are our necessary goals to reach before she can be discharged -- but then she barfed up everything she'd swallowed that morning, all over me.
While that was disappointing, it wasn't entirely unexpected -- there was a lot of blood and saliva in her stomach, and toddlers seem to have a tough time handling that. The silver linings to the incident are: 1) she is not having much trouble with swallowing anymore, and 2) getting the accumulated gunk out of her tummy may actually help her keep food down the next time we try giving her something. (And I'd packed extra clothes. Bonus -- it all washed out!)
I've come home to get a real shower, catch a few winks, and update all of you. Mama has the fort covered down at Gillette. We have not heard anything yet about if or when Wynn will be discharged; obviously we will have to take that as it comes.
As promised, here are a couple of pictures. --Scott
Wynn in her surgical gown before the operation, looking very much like a little yellow duck...
Being comforted by her mama yesterday afternoon. The no-no sleeves are just Velcroed around the arm, but are rigid enough to keep the elbow from flexing. She of course figured out how to get out of them at about midnight last night.